– Anil Tandon
Working as a volunteer in India I always seem to learn more than the stated intention of travelling to India to teach others. In October 2015 I was fortunate to spend a week in Kolkata with my good friend and colleague, Santanu Chakraborty, and this trip reaffirmed this. Santanu is an incredible individual who left his career as a professional tabla (a form of Indian drums) player in order to establish a palliative care service 35km from the city centre on the northern outskirts of Kolkata.
I was initially introduced to Santanu in approximately 2002 when he was at the start of his journey to found the Ruma Abedona Hospice (RAH). Named in honour of his late wife, RAH is volunteer driven organisation providing predominantly community based palliative care. In 2005, the Ruma Abedona Hospice building was officially opened by Dr Rosalie Shaw and initial work concentrated on a community model of care together with a day hospice facility. In 2007 Santanu was the first non-health care professional applicant to be accepted into the Flinders University Certificate in Palliative Medicine, and as part of this course he spent time with me at Sir Charles Gairdner Hospital for the clinical component of his learning.
In 2012, Santanu was invited by the General Manager of Chittaranjan National Cancer Institute (CNCI), the sole public cancer hospital located in the centre of Kolkata, to enter into a formal partnership with them. After two years of discussions and planning, RAH volunteers began an outpatient clinic. It was on the background of all of this work and steady progress that I finally took the plunge and accepted an invitation from Santanu to spend a week with him, to observe RAH in action and hopefully provide some education to him and his team of volunteers.
As luck would have it, the timing of my visit was remarkable for two reasons. The first was that I was in Kolkata the week before the annual Durga puja. In India there is a great deal of regional variation as to which of the various gods and goddesses are more closely worshipped. In the state of West Bengal, the goddess of Durga rules supreme and the annual puja, or prayer ceremony, in her honour literally causes the state, and its capital city of 14 million people, to spend a week beautifying itself and then a week in shut-down when the puja occurs.
The second reason was that I left Australia just as The Economist Intelligence Unit and Lien Foundation released their second Quality of Death Index report to coincide with World Hospice and Palliative Care Day. This report was notable because it spoke clearly of low income countries that were able to provide excellent palliative care through models of innovation and individual initiative; that quality of care requires not just access to opioids but also inter-disciplinary teams that provide psychological and spiritual support to patients and their families; and that community-based efforts to raise awareness are essential. All of these features were made real for me by the extraordinary team of local Indian volunteers who give their time so freely to RAH.
Santanu is a highly professional manager and lay clinician whose vision and determination has enabled the organisation to grow steadily over the last 10 years of service provision. Although they do not yet have the ability to prescribe and dispense morphine, RAH has demonstrated to me that in a grass-roots model of community and outpatient palliative care, trained volunteers operating as nurses and social workers can provide equal or superior care to what is provided in many settings in Australia. Certainly this point was obvious to me as I sat in a cramped and basic outpatient room in CNCI to observe a palliative care clinic where patients and their families would see the doctor in one room and then move to the next room where they would meet with the RAH volunteers for wound care, psychological support or perhaps just because they knew there would be a friendly face and a listening ear. It certainly is a model of superior palliative care that I wish I had access to in my clinic in Perth where consultations are dominated by completing reams of paperwork and reviewing results of the latest PET scan.
Santanu had organised two whole day workshops for me, with topics including a general introduction to palliative care, communication skills, wound care and lymphoedema management. Despite these attempts to impart some knowledge to the teams at CNCI and RAH, I returned home to Australia much richer, having seen what one man with determination can achieve and the power of community volunteering at its zenith.